Health Rising's "Lives Interrupted" program is at a bit of a crossroads and could use your help. The program was almost, almost done until something - a good something - came up which suggested that the program could use some more eyes on it. Lives Interrupted is...read more
It's great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress. The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study...read more
My Story When I came down with ME/CFS/FM around 1980 there was literally nowhere to turn. By the time I became aware of these diseases in the late 1980’s and 1990's, most of the information on them remained repetitive and shallow. Determined to build a site which...read more
Studies showing that the parts of the brain that process pain signals are lit up like Christmas trees in fibromyalgia, migraine, and other chronic pain disorders indicate that the brain plays a major role in these diseases. Other fibromyalgia studies, which indicate...read more
Through the Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – an Alternate Reality to ME/CFS?
Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial...read more
After 11 years of marinating in chronic illness, my ability to work has all but evaporated and I have entered the world of full time disability for the first time in my life. This time of year would normally mark a return to university life after the summer break....read more